The Pain of Autism

Many people, more knowledgeable than I for sure, have posted profound essays about autism.  Many books have been written about the subject as well.  I have a read a few blogs and essays, but now I find myself researching in earnest due to a friendship that has blossomed.  Once the friendship cemented and started to grow, I found myself fascinated by my friend’s oldest child.  He, as you probably guessed, has autism.  Or maybe autism has him.  I’m still deciding how I “should” think (according to the experts.)

Some get offended if I say “an autistic child” because they feel that I stress the autism when the child matters more.  They prefer the use of “a child with autism.”  Other experts preach that parents shouldn’t wish for their autistic child to not have autism as it would change the specialness of said child.  I’ve reached the point where I throw the bull crap flag at that view.  I, for one, would like to know who that sweet child would be without the influence of autism.  It would be such a gift for that child to be able to tell me what he is wishing for, thinking, feeling.  I consider autism a disease, not a special quality.

I’ve been a problem solver all of my life, and this situation isn’t any different.  It’s actually one of the most important puzzles I’ve ever seen.  The maddening part is that I have no idea how to figure it out.  That does not mean, however, that I will simply shrug and walk away.  I’ve seen my friend cry too many tears to stand by and do nothing.

After falling in love with my friend’s littles, I have discovered a cold, hard truth: autism is painful.  It hurts a parent’s heart to watch the wall build up, all the while removing a child from the rest of the family.  Autism shreds a parent’s heart piece by piece.  Anyone who loves the child is affected.

With the current diagnosis rate of 1 out of every 68 children, maybe we all need to do some studying!

https://www.autismspeaks.org/what-autism/prevalence

 

Prama

Prama….the drama that is prom.  I have never had such a hard time finding a dress in my life.  My Bela has been looking for a dress for weeks!  After fighting for her right to go to prom (with a date from our town), she found a date, but it was already late—the first week of March.  (Prom is March 18!)  I took her to the prom shop in the mall, but they couldn’t find her size.  I then went to JC Penney and ordered a dress, but I had doubts that it would fit.  Then we trudged to the car, worn out and stressed, and headed home.

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My friend, Crystal, was all over Amazon, and she ordered a dress.  The delivery date was “between March 17 and March 29.”  That wouldn’t work, obviously!  By then, I had panicked, and I had gone to Hirschfeld’s Prom Shop.  After two trips there in one week, we found a dress that fit and put it on hold “just in case.”  So…then came the scramble: I canceled the order from JC Penney, got my money back, Crystal canceled the first Amazon order and ordered a second dress on Amazon (5-day shipping!), and we all waited while I gnawed my nails down to the quick (figuratively if not literally).

The Amazon order arrived—RIGHT ON TIME!—and, miracle of miracles, it fit!!!  It seems the drama that is prom is handled….

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 Update

Bela went to prom in her dress we bought on Amazon. Crystal did her hair, and Bela had a great time.

 

Ready for a Change

Lately I have been feeling like I need a change.  I catch myself thinking about a new job, new town or a new hobby.  I get the feeling that something more is “out there” somewhere waiting for me.  I’m tired of my same old routine.  The bottom line is that I am bored.  I need something to rid me of the “blah.”

Wish me luck as I embark on a journey to new….I’m not yet sure of my route or my destination, but go I shall.